Entre a classe hospitalar e a escola regular: o que nos contam crianças com doenças crônicas

Abstract

This thesis had as main objective to investigate, based on autobiographical narratives of children in treatment of chronic diseases, their ways of perceiving the processes of entry and return to the regular school. We took as object of study the experiences of 3 (three) children in treatment of chronic diseases about their processes of entrance in the school or return to it. In our research, we adopted the epistemological principles of autobiographical research in education. We also guide ourselves in childhood studies, in cultural psychology, in a narrativist perspective, and in theories of schooling in the context of illness. The research involved 03 (three) mothers and 03 (three) children, aged between 05 (five) and 06 (six), who had pedagogical support in the hospital class, the research locus, between the years 2014 and 2017. The research corpus is constituted by the narratives transcription of three sick children, which were produced in a make-believe situation, in conversation with the researcher and a small alien, called Alien, who comes from a planet where there are not schools; children's drawings; transcription of narrative interviews with the children´s mothers; notes in the researcher's field diary about the research activities and observations experienced during the field activities. The analysis revealed that the processes of entry and return to the regular school are full of challenges for the sick child, however, they represent, essentially, the return to a normal life. In conclusion, the children's narratives corroborated with the affirmation of the hospital class as an important ally in the access to schooling and continuity of studies by sick children during health treatment, and enabled us to think of the regular school as a representation place of the normal life. However, they also reveal, in particular, the need to expand the dialogue between the hospital class and the regular school, in order to ease the impacts of entry and return to regular school.