Um olhar para ELA: um documentário transmídia para formação humana

Abstract

Introduction: Observing the need to open space for thematic discussions related to rare diseases for health professionals, we speak here specifically of Amyotrophic Lateral Sclerose (ALS), not only doctors, but also the assistance nucleus, family members and ALS carriers for May they be enlightened and sensitized for a more humane formation and care. Educational technology can be considered an effective measure to carry out strategic actions aimed at practically all audiences, even using audiovisual resources. Objective: The objective of the project to be developed is to understand the perception of two patients, relatives and health professionals inserted in the context of Amyotrophic Lateral Sclerose in light of the psychological approach, for the production of a transmedia documentary and also the transdisciplinary International Seminar for innovation in health : Um olhar for Ela . Method: The idealized technology to address the theme of Education for ELA was the construction of a transmitted documentary and educational module that will be exhibited on digital platforms. For this work, the use of the research-action methodology was defined. Foram carried out semistructured interviews with professionals from the health area that acted in the RevEla project, as well as patients participating in the project and their relatives. In general, the categories that are interviewed represent neurologists, respiratory physiotherapists, psychologists, social workers, lawyers, relatives and patients present in three Brazilian states. Product: The documentary traces the story told by the patient and family members, in addition to the two health professionals, using a more humane and psychological language for the public-unless it deals directly or indirectly with ALS carriers, within this theme and complement , an international transdisciplinary seminar on innovation in health was produced: Um Olhar Para ELA. Conclusion: the development of skills that this work provides allows us to work this methodology in health services, encouraging professionals and other public participants-except to use such a tool in the environment that is inserted.