Patient and public involvement in research: practical experiences from different settings

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dc.contributor.authorLongo, Egmar
dc.contributor.authorChagas, Paula Silva de Carvalho
dc.contributor.authorMagalhães, Adriana Gomes
dc.contributor.authorFaria, Christina Danielli Coelho de Morais
dc.contributor.authorCórdova, Vanessa Vega
dc.contributor.authorSturgeon, Kate
dc.contributor.authorSouth, Annabelle
dc.contributor.authorGonzález-Carrasco, Félix
dc.contributor.authorLennon, Olive
dc.contributor.authorMorris, Christhopher
dc.contributor.authorCromarty, Ben
dc.contributor.authorHickey, Julianne
dc.contributor.authorRenias-Zuva, Patience
dc.contributor.authorHorgan, Frances
dc.contributor.authorCross, Andrea
dc.contributor.authorThomson, Donna
dc.contributor.authorPutterman, Connie
dc.contributor.authorMicsinszki, Samantha
dc.contributor.authorMccauley, Dayle
dc.contributor.authorPuspakesuma, Nabila
dc.contributor.authorLestari, Adinda Dewi
dc.contributor.authorFaza, Achmad
dc.contributor.authorKusuma, Adytya Arya
dc.contributor.authorSholehuddin, Jihan Lutfiah Yashmine
dc.contributor.authorNamisango, Eve
dc.contributor.authorPavarini, Gabriela
dc.contributor.authorKerasidou, Angeliki
dc.contributor.authorAlvarez-Aguado, Izaskun
dc.contributor.authorEspinosa, Filipe
dc.contributor.authorSpencer, Herbert
dc.contributor.authorKetelaar, Marjolijn
dc.contributor.authorCampos, Ana Carolina de
dc.contributor.authorFacchin, Ana Carolina Ezequiel
dc.contributor.authorSilva, Rafaela Ramos Anacleto da
dc.contributor.authorAlvim, Michele de Almeida
dc.contributor.authorAlonso, Livia Ferreira Coutinho
dc.contributor.authorMonteiro, Karolinne Souza
dc.contributor.authorRegalado, Isabelly Cristina Rodrigues
dc.contributor.authorJesus, Caline Cristine De Araujo Ferreira
dc.contributor.authorPeniche, Paula da Cruz
dc.contributor.authorSantana, Camila Araújo Santos
dc.contributor.authorNascimento, Rayssa Maria do
dc.contributor.authorSaraiva, Beatriz Bicalho
dc.contributor.authorAquino, Bianca Freitas de Araújo
dc.contributor.authorLeite, Danyelle
dc.contributor.authorSoares, Thalita Henrique Silva
dc.date.accessioned2025-01-09T14:44:27Z
dc.date.available2025-01-09T14:44:27Z
dc.date.issued2025-01-08
dc.description.resumoThis e-book was strategically designed and organized to address theeducational needs of Patient and Public Involvement (PPI) inResearch, particularly for researchers in countries like Brazil, wherePPI still needs to be widely incorporated into research projects andactivities. It builds upon our first e-book, Patient and Public Involvement inResearch, which introduced the foundational concepts of involvingpatients and the public in research. In this new e-book, we presentpractical and successful experiences of "how to do PPI," contributedby collaborators from various parts of the world. You will find examples of patient involvement across different healthconditions and public engagement from various age groups inresearch led by countries such as England, Canada, Ireland, and theNetherlands. Additionally, initiatives from low- and middle-incomecountries, including Brazil, Chile, Uganda, and Indonesia, are shared. The growing interest in PPI training highlights the increasingrecognition of the value of collaboration between researchers andthe community. The need for PPI implementation is urgent—not onlyto meet this demand but also to transform the research landscape. Effective integration of PPI potentially will redefine how studies areconducted, ensuring that outcomes are more relevant, impactful,and aligned with the real needs and experiences of patients and thepublic involved.The chapters in this e-book were written bymembers of the public, researchers, clinicians, and students atundergraduate, master’s, and doctoral levels, who share theirexperiences with PPI. We hope this publication inspires readers to delve deeper, initiate,and/or refine the application of PPI in all research projects. Since most collaborators are native English speakers, this e-bookwill be published first in English and subsequently translated intoPortuguese and Spanish to disseminate this content further in Braziland Spanish-speaking countries. Follow us for updates (@epp.brasil)pt_BR
dc.identifier.citationLONGO, Egmar et al. Patient and public involvement in research: practical experiences from different settings. Santa Cruz: [s. n.], 2025, 204p. ISBN: 978-65-01-29530-5pt_BR
dc.identifier.isbn978-65-01-29530-5
dc.identifier.urihttps://repositorio.ufrn.br/handle/123456789/61079
dc.languageenpt_BR
dc.rightsAttribution-NonCommercial-ShareAlike 3.0 Brazil*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-sa/3.0/br/*
dc.subjectPPIpt_BR
dc.subjectPatient and public involvementpt_BR
dc.subjectEngagementpt_BR
dc.subjectResearchpt_BR
dc.subjectConsumerspt_BR
dc.subjectPractical experiencespt_BR
dc.titlePatient and public involvement in research: practical experiences from different settingspt_BR
dc.typebookpt_BR

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