Itinerário terapêutico das pessoas com doença falciforme na Rede SUS do Estado do Rio Grande do Norte

Abstract

Sickle cell disease is part of the hemoglobinopathies group and is considered the most common hereditary disease in Brazil. Its incidence in the Brazilian population occurs not only in the population of origin, the black, but in all races of the country due to miscegenation. This research aimed to delineate the therapeutic itinerary of these patients with sickle cell disease in the SUS Network of the State of Rio Grande in the North, aiming to find their main difficulties regarding the care and the lack of knowledge about the disease by health professionals. For this, we used the focus group method with six people who participated in the Association of People with Sickle Cell Anemia in Rio Grande do Norte. For the analysis of the results, we used the content analysis technique, resulting in three thematic categories: Diagnosis and living with sickle cell disease; Invisibility of the disease by the Health Care Network; Absence of a caution line; and Appreciation of the social movement. It was observed that there is no line of care for patients in the state, making health care less than guaranteed by law. These results prove that the State SUS Network should promote improvements to the access of this population aiming at a better quality of life.